Good morning all
Yesterday was Garets bi-monthly appointment at Shands with Dr Fricker. These days seem to get longer and longer. I think this is just in my head since Garet is at the age that he does not like going to the dr. We talk the entire way to Gainesville about what they are going to do and he is all good with. He asks me if he is going to get any ouchies at the dr. He does not get upset as long as I tell him that there will no ouchies. When we go to Gainesville he really does not get any ouchies just a couple test that they stick sticker all over him. Well after talking to him in the car I thought that the day would go smooth. Not so much. We got there and only had to wait a couple minutes to go back and get his weight and height. Garet is now 36 inches tall and his weight is 26lbs. He started to get a little whining while we were doing that. He did not like when they put the oxygen sensor on his toe and said it was an ouchy when they took his blood pressure. Once we got back out to the waiting room he was ready to go home. All he wanted to say was time to go home. All done. We finally got to go back to a room and they came in to the EKG. As soon as the tech walked in the room he started saying NO WAY. She tried to talk to him and get him comfy with her but no such luck. We have found that with Garet you just have to do the test. As soon as he sees what you are doing and that it is not hurting him then he relaxes and lets you finish. This is what we finally did after the tech tried for about 15 minutes to tell him it was not going to hurt. One test down one more to go. The next thing we had to do what to have an ECO done. This one is normally a little harder. We have to go to another room and he has to sit up on a table for about 15-20 minutes or so. They do have a tv in this room and we always pick out one of Garets favorite movies to take with us in hopes that it will help him to be calm. This time we took the land before time movie. Dinasours are awesome. He screamed for about a minute and then he realised it was not hurting and he was missing his movie because he was crying. He still had to sit on my lap or in this case lay down with me for the entire test but at least I did not have to hold him down to the table this time. I think a couple more times and he will understand that at this dr's he does not get ouchies.
Onto the important stuff. Dr Fricker said that the walls of his heart are starting to thicken a little bit. This is good as long as they do not get to thick. He heart is still working at only about 35%. This has been very stable for the past year. His body seems to be compen sating very well for the low heart function. As long as he continues to grow and eat wall then we will just watch and wait. Overall a pretty good appointment. Hopefully it will be another 2 months before we have to visit over there again.
Thank you to everyone that has been continuing to think and pray for Garet. He is so special to us and is an awesome little guy.
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